MS Hope Programme – starts 27th September 2023 – Places available to book now!

Are you living with MS?

Do you want to enhance your resilience, rediscover strengths and increase your ability to cope?

Hope For The Community CIC are running a group self-management programme for people living with MS to improve their wellbeing. The Programme was co-created with people living with MS, healthcare professionals and researchers at Coventry University to make sure it is rooted in science.


What will the programme involve? 

You will be asked to enrol on a 6 week online Hope Programme. It focuses on you and your wellbeing.

  • Learn whenever you like, at a pace that suits you. Please note that the Programme is not delivered in a way for people to be on “at the same time”. It takes about 2 hours to go through the materials each week, but you can do this at your own pace and time that suits. Some people do chunks of 20mins some people do more or less whenever they can find the time
  • Learn wherever you like. You can access the Programme on desktop, tablet or smartphone. You will require an internet connection to complete it.
  • You can learn whatever you like. If you do not enjoy some of the content or activities, just skip it or bookmark it and come back to it later.
  • Share and learn from each other. We all have a story to share and we learn best with others. If you want to, make sure you join in the page discussions, forum topics and by liking and commenting on others posts.

Each week the programme covers topics like:

The programme includes quizzes, worksheets, audio and video materials, interactive activities and social networking via email and forums. There will also be a mindfulness session and an opportunity for the group to come safely together online. You will be supported throughout by trained facilitators who live with MS.

The programme can be accessed from PC, laptop, tablet or smartphone. The programme is not delivered in a way for people to be on “at the same time”. You will have access to the programme 24/7. It takes about 2 hours to go through the materials each week, but you can do this at your own pace and time that suits. We deliver the programme to people living with MS around the country and many found the programme helped them to feel better and improved their quality of life.

Next course date:                   27th September 2023 – ONLINE

Sign-up and more info:   BOOK NOW

Brain Health & MS, MS Society Webinar – 20 July

Talks with MS are proud to host a series of webinars in partnership with the MS Society to discuss different aspects of MS in the Black Community.

Join Terri-Louise who is the founder of Talks with MS as she guides you through an evening with a panel to discuss Brain Health & MS.

Brain Health refers to remembering, learning, planning, concentrating and keeping a clear and active mind. The panel will be discussing ways to keep an active and healthy mind and sharing any lifestyle changes and tips to manage.

Date: Thursday 20 July

Time: 7pm to 8pm

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Click here to book your space

New research into genetic markers and MS progression

Researchers have discovered the first genetic marker associated with a faster progression of MS, paving the way for new treatments to be developed.

The global study of more than 22,000 people with MS involved 70 global institutions led by scientists from the University of Cambridge and the University of California San Francisco (UCSF) in the US.

The immune system of people with MS attacks their brain and spinal cord, resulting in symptoms such as fatigue and problems with vision, movement, sensation and balance.  While treatment has been developed to tackle symptoms, none can prevent its progression.

Researchers assessed genetic factors influencing MS severity.  They combined data from 12,584 people with MS, linking genetic variants to particular traits such as the time it took for each individual to advance from diagnosis to a certain level of disability.

One genetic variant was found to be associated with faster disease progression. The variant sits between two genes with no prior connection to MS, known as DYSF and ZNF638. The first repairs damaged cells and the second helps control viral infections.

Prof Sergio Baranzini at UCSF, who is co-senior author of the study, said: “Inheriting this genetic variant from both parents accelerates the time to needing a walking aid by almost four years.”

Dr Adil Harroud, lead author of the study and former postdoctoral researcher in the Baranzini Lab at UCSF, added: “These genes are normally active within the brain and spinal cord, rather than the immune system.

“Our findings suggest that resilience and repair in the nervous system determine the course of MS progression and that we should focus on these parts of human biology for better therapies.”

Professor Stephen Sawcer from the University of Cambridge and Cambridge University Hospitals NHS Foundation Trust, said: “Understanding how the variant exerts its effects on MS severity will hopefully pave the way to a new generation of treatments that are able to prevent disease progression.”

The research team is now collecting a larger set of DNA samples from people with MS to find other variants that could contribute to disability from the condition.

You can read more about this interesting research on the UCSF website

Enable Magazine July-August

Presenting Enable Magazine
July-August issue

The UK’s leading disability and lifestyle title

Introducing the July-August issue of Enable Magazine.
We’re so excited to share this issue with you and your network.

 

This issue is packed with inspiration to get you going: we’re discussing everything from ways to get active, to how to get festival ready. We’ve even included a simple but delicious recipe for you to try. If you’re looking for something to read while you relax, I recommend my favourite book of the summer: actor Tommy Jessop’s new memoir, A Life Worth Living. Ahead of the book’s release, I had the chance to catch up with Tommy, who is also this issue’s cover star, to talk about why you should pick up a copy.

While the summer can be exciting, the cost of living, cuts to social care and the need for equity remain key concerns. That’s why we’ve packed this issue with information, advice and support on accessing social prescribing, money updates, the need for more specialist dementia nurses, alongside spotlighting exciting projects, organisations and more.

Enjoy all of this and much more inside the July-August issue.

Talking MS, Talking Fatigue, MS Society Webinar – 24 July

These conversation cafés are hosted by one of the MS Society’s Living Well Facilitators. They are also joined by one of our volunteers with lived experience who will get the conversation started. The format of the café makes sure that everyone has a chance to share their thoughts however there is no pressure to speak.

These sessions are for anyone living with MS in the UK. They are a great way to get together to chat and share your experiences. This month they’re looking at fatigue. 

Date: Monday 24 July

Time: 6pm to 7pm

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Click here to book your space

Cancellations

Whilst we are aware that people become unwell at the last minute, we are having a lot of last-minute cancellations and/or people not showing up for their oxygen sessions. 

Please be aware that I have a long waiting list of people with other conditions and it is a shame that I cannot offer these up.  If you can please give plenty of notice of cancellation.

Please note Sue is only part-time and only works Monday, Tuesday and Thursday.  Alison generally covers Friday but not always, so the answerphone is not checked every day. 

Thank you for consideration.

Easy fund raising, invite new supporters

Make it a great month and year for Multiple Sclerosis Therapy Centre Oxfordshire.   

We’re now officially halfway through 2023 and what better way to give your fundraising a boost than signing up new supporters to raise donations for you with their everyday shopping.
               
Invite new supporters, they raise £5 and we’ll double it*!   

Help us get July off to a great start for Multiple Sclerosis Therapy Centre Oxfordshire by signing up to support us for FREE on #easyfundraising.

You can raise donations whenever you shop online with over 7,000 brands including John Lewis & Partners, eBay, Argos, M&S and more. Plus, once you’ve raised your first £5, easyfundraising will double it! Sign up today – it will make a BIG difference to us this year: https://join.easyfundraising.org.uk/omstc/22UNQQ/c2s/0aQJMZev/CR033/facebook/  
£47 million Raised  2.5 million Users   190,000 Causes 
 
Terms and Conditions apply
*£5 bonus donations – See here
 

Cheque presentation

Cheque presentation to Andy by Hugh Collins Rice from St Peter’s Church, Didcot who raised £393 for the MS Centre at their recent quiz and chip night. 

Many thanks to everyone who supported the event.

June 100 club winners

June 100 club winners:

1st Sara Twine

2nd Carol Gulliver

3rd Angela Day

Sharing a prize fund of: £102.50

You’ve got to be in it to win it!!