Source UAB News: Results from a clinical trial of more than 250 participants with progressive multiple sclerosis revealed that ibudilast was better than a placebo in slowing down brain shrinkage. The study also showed that the main side effects of ibudilast were gastrointestinal and headaches. The study was supported by the National Institute of Neurological Disorders and… Read more »
Posts By: Karen Jones
People with primary progressive MS need ocrelizumab now
Source MS Society: Ocrelizumab should be available on the NHS for everyone with primary progressive MS who could benefit. We call on NHS England, the National Institute of Health and Care Excellence (NICE) and Roche to work together to secure a deal to make that happen. Raise your voice and help the MS Society tell NICE and… Read more »
MS Annual Quiz Night, Friday 12th October
MS Annual Quiz Night, Friday 12th October, The Barn (Didcot Conservative Club), 7 for 7.30 start, £7 per person, up to 8 in a team. Please advertise to your friends, put on your facebook post etc. Please please can members donate some raffle prizes, especially drink, chocolates, biscuits etc. Many thanks, Click here for… Read more »
August 100 club winners
August 100 club winners: Barbara Bentley, Lindsay Brain, Linda Tierney. Congratulations
Volunteers sought for help with University of Sheffield Research Study Design of an app to help with fatigue in MS
Do you or your partner have MS? Would you like to help design an app to help people with MS manage fatigue? The University of Sheffield has asked for volunteers to help with their research study. They asked a group of people with MS, and a group of healthcare professionals, about what they thought the… Read more »
Novel sub type of Multiple Sclerosis
Source Science Daily: Cleveland Clinic researchers have discovered a new subtype of multiple sclerosis (MS), providing a better understanding of the individualized nature of the disease. MS has long been characterized as a disease of the brain’s white matter, where immune cells destroy myelin — the fatty protective covering on nerve cells. The destruction of myelin… Read more »
Do you have disability equipment that is no longer needed?
We all have or know someone with that bit of equipment stored in the house, the garage or shed, that’s no longer needed. If you or a relative have community equipment that is no longer needed please call NRS on 0844 893 6960 (Monday-Friday 8.30am-4.30pm) to arrange for it to be collected FREE. Not returning… Read more »
Other brain diseases reveal clues to primary progressive MS
Source MS Research Australia: Brain disease genes linked to primary progressive MS risk. Despite many genes being found that contribute to the risk of developing MS, so far research has not identified genes that are specific for the risk of developing the primary progressive form of MS. Now, a new international study has shown that rare… Read more »
What is SymTrac™
Source Novartis: SymTrac™ is a free app available on iPhone and Android that helps people with Multiple Sclerosis (MS) track general wellbeing and symptoms over time. The data recorded can be viewed in easy-to-read charts and shared with MS specialist teams to enhance consultation time and support decision making. SymTrac™ is the first MS app to… Read more »
A date for your diary
Harwell Charity Craft Fair, Sunday 18th November. Craft fair 2018 v1
