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Source MS Trust: Draft guidance published today on August 8 does not recommend Sativex as a treatment for MS spasticity because it is not a cost-effective treatment. In November 2018, the legal status of cannabis was amended to allow specialist clinicians to legally prescribe cannabis-derived medicinal products to patients with an exceptional clinical need. To support this change, NICE (National Institute for Health and Care Excellence) has reviewed… Read more »
Source MS Trust: MS Trust supporter Jenna Chudasama teaches at a secondary school in Leicester and recently used the pack to deliver an assembly to students about her own MS experience. “I hope that I inspired others to live their life to the full, no matter what challenges they are faced with,” Jenna tells us. I… Read more »
Source Parkinson’s News Today: The Multiple Sclerosis (MS) and Parkinson’s Tissue Bank at Imperial College London, is the largest repository of brain and spinal cord tissue samples in Europe. Now, the MS Society and Parkinson’s UK has announced a £3 million grant (about $3.6 million) to support its transition into a digital brain bank powered by a virtual reality platform, which will provide… Read more »
No appointments have yet been booked for Sue Barnden. She is at the centre all day on Thursday 26th September, and you can book a 45 mins slot. This is the first time she has been twice in one year, I do hope we can make her visit worthwhile. Please contact the centre for appointments.
Source Kings College London: “I am a third-year psychology student at King’s College London, currently assisting a PhD student, Jowinn Chew (cc’d in this email), on her research supervised by Dr Colette Hirsch and Prof Rona Moss-Morris from the Health Psychology Department. The research is focusing on identifying the cognitive mechanisms which underpin and maintain… Read more »
Source BBC: Scans carried out when someone is first diagnosed with multiple sclerosis can predict their long-term prognosis, research has shown. Magnetic resonance imaging (MRI) scans are already a key part of the diagnosis and management of MS. But a 15-year study of people with clinically isolated syndrome (CIS), who can go on to develop MS,… Read more »
Source BBC: Welsh patients are taking part in a drugs trial aimed at slowing late-stage multiple sclerosis progression. Experts are looking at how effective a drug is after a smaller study found it may slow down neuronal degeneration. Euryl James, of Llangennith, Gower, said she got involved as a breakthrough could be life-changing. A total… Read more »
Source MS Trust: The European Medicines Agency (EMA) has recommended that Gilenya (fingolimod) must not be taken by pregnant women or women of childbearing age who are not using effective contraception. A review of Gilenya and pregnancy was carried out by the EMA’s safety committee following reports which suggested that babies born to mothers taking Gilenya during pregnancy have… Read more »
100 club winners for July: 1st – Linda Tierney 2nd – Sue Doran 3rd – Steve Lewis Sharing a prize fund of: £77.50 You got to be in it to win it!! Speak to Sue for an application form, only £5 a month!
Source Multiple Sclerosis News Today: A first group of healthy volunteers in a Phase 1 trial assessing the safety and tolerability of T20K, Cyxone‘s plant protein-derived candidate for the treatment of multiple sclerosis(MS), has been dosed in a study taking place in The Netherlands, the company announced. T20K is an investigational prophylactic (preventive) therapy, possibly intended for all MS… Read more »